12.
“I was misdiagnosed twice by a dermatologist for a bruise-like rash that showed up on my leg one day. The first time, they told me they couldn’t biopsy it and that it was a condition called ‘dark spots’ and it would go away in six months.”
“A year later, I went back, and they biopsied it. This time, they misdiagnosed me with an autoimmune disorder called morphea. I had to go to a rheumatologist, take an autoimmune suppressant and steroid creams, and undergo bloodwork constantly. However, the spot always looked the same, so I gave up on treating it and learned to live with it.
This diagnosis sat wrong with me from the beginning because certain things about it made no sense. Morphea is a type of scleroderma that generally leads to muscle deformities, but that never happened to me. So, one day, after speaking to my sister (who’s in the medical field) about it, I fell down a rabbit hole and discovered what we believe to be my final, actual diagnosis: Linear atrophoderma of Moulin.
There are roughly 50 documented cases of LAM, which is why it makes sense I was misdiagnosed. Similarly to me, the patients in the research papers were misdiagnosed with morphea first. It was on different parts of their bodies, but it still looked like my skin condition.
We’re pretty sure it’s permanent, so I guess it’s kind of neat.”
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